No one understands this better than Karine de Souza. This Brazilian woman has spent her entire life protecting herself from the sun by using SPF100 sunscreen, even when indoors.

At the age of three, Karine was diagnosed with Xeroderma Pigmentosum, a “one-in-a-million” condition that makes her extremely photosensitive. Even brief exposure to the sun can lead to severe sunburn, making it too risky for her to spend much time outside as a

child.

“When I expose myself to the sun, I don’t feel anything in the moment. However, lesions appear in the future, which need to be removed because of cancer,” she explains.

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